World Autism Awareness Day – UPDATED for 2012 stats

Forgive me while I get all PSA-y on you. This is near and dear to my heart.

April 2, is World Autism Awareness Day.

1 in every 88 kids is diagnosed with Autism.

It’s this one that gets me: 1 in 54 boys. What’s happening to our boys?

Including this one:

My eight year old is high-functioning autistic. His autism isn’t overly noticeable upon first glance but it comes out in subtle ways, especially if he’s having a bad day. My little guy was diagnosed 3 years ago this month and, at that time, the hubby and I wrote up this short summary of Autistic behaviors to share with our friends and family.

Autism is a brain development disorder that first appears during infancy or childhood. Symptoms are different for each person and tend to continue through adulthood, though they may become more subtle over time.

For us, it was abnormal speech development that tipped us off originally. Hearing tests, speech therapy and an Early Intervention Preschool led us to a high-functioning Autism diagnosis when he was 5.

A common sign of Autism is noticeable social impairments; autistic people often lack the intuition about others that many people take for granted. They also tend to have impairments in communication as well as restricted interests and repetitive behavior.

Here is some more information about these three groups of symptoms:

Social Impairments

These become apparent early in childhood. Autistic infants smile and look at others less often and respond less to their own name. Autistic children from 3-5 years old are less likely to approach people spontaneously, or to imitate and respond to emotions, communicate nonverbally, and take turns with others.

My little guy used to be that way when he was younger, but he’s pretty social now. Unfortunately he doesn’t know his boundaries very well. When he talks to strangers – which he LOVES to do – he often reaches out and touches their clothing, like a zipper, a belt, a pocket, etc. He fiddles with it while he gets his words out. He’s not trying to invade your personal space. He’s just building a bridge to communicate with you.

Communication

About a third to a half of individuals with Autism do not develop enough natural speech to meet their daily communication needs. People with autism have difficulty understanding non-verbal communication, including body language, facial expressions, or tone of voice. It’s important to make messages verbal and explicit when talking to them.

Repetitive Behavior

  • Movement that seems purposeless, such as hand flapping, making sounds, head rolling, or body rocking. My dude flaps sometimes. When he realizes what he’s doing  he’ll say he’s a bird and start chirping and trying to “fly” with his flapping arms.
  • Compulsive behavior, such as arranging objects in a certain way.
  • Resistance to change; for example, insisting that the furniture not be moved or refusing to be interrupted when speaking. Oh man. Preparation is key. We prep him until he’s over-prepped but we can’t prep for everything. An unforeseen something, like a fall on the way to school, can turn into a 30 minute ordeal with him and whichever adult is trying to help him through it. It totally messes with his head when his daily plans are disrupted. Bad mojo.
  • Ritualistic behavior: the performance of daily activities the same way each time, such as an unvarying menu or dressing ritual. Like, “Mom, I can’t brush my teeth! I haven’t put my shoes on yet!”
  • A limited focus, interest, or activity, such as preoccupation with a single television program or toy. Yep, certain TV programs or movies. More of this when he was younger. It was soothing to him. He memorized movie lines and quoted them incessantly.

1 in 88 kids is A LOT of diagnosed Autistic kids. A LOT. If you are thanking.your.lucky.bleepin’.stars. that you don’t have to deal with this in your kids please keep in mind that it’s entirely possible your kids will be friends with Autistic kids. Or your sister or brother or cousin will have Autistic kids. Or, if you’re a teacher then you certainly will have to teach Autistic kids.

Learn about it. Be AWARE. Next time you see a kid having a meltdown in a store or on a plane then maybe it will be a little easier to understand because maybe, just MAYBE, that kid is Autistic. You won’t know. Please don’t judge that parent. They are doing the best they can. They need your understanding, your awareness and your support.

That’s an important point so please indulge me for a minute on my soapbox: Seriously, if you tell me to shut my kid up or calm him down you will see my fierce Mama Bear side come out and I’ll tell you exactly where you can shove your judgment. I’ve been pretty lucky with my boys, but I’ve seen mothers harassed on planes and it sends me through the freakin’ roof. I stick up for those moms. I give them encouragement and tell them to ignore the bonehead a-holes who HAVE NO SOUL. And then I leave them alone to deal with their child with, hopefully, a little less stress and a lot more “someonehasmyback-ness.” Compassion people. It’s not that hard. Soapbox off.

Be aware. Be compassionate. It takes a village.

Stef’s Random Thoughts

  • Dude, it totally snowed yesterday! Finally. We haven’t had snow since the first week of December – even when the rest of the U.S. was snowed in. Just enough on the ground this morning to make everything look a little prettier, a little brighter, and enough to make the commute interesting. 
  • I am actively making an effort to leave the office by 6 pm every night. I did last night, and was rewarded with this gorgeous sunset on the snowy foothills:
  • Last night I finally sat down and filled out the 15 page assessment called a SIB-R (Scales of Independent Behavior-Revised) for Jamie. The purpose of the SIB-R is to assess adaptive and maladaptive behavior to determine need for assistance. The school psychologist will provide his own assessment and, from those and the diagnoses we have received from doctors, we will officially change Jamie’s status from developmentally delayed to Autistic & ADHD. This could potentially change the amount of resources he receives from the school district, and it has an influence on his ability to be included in various other state & federal programs for “disabled” kids. (I hate that label). The challenge for these types of assessments is to grade your own child as bad as you possibly can. Don’t give them the benefit of the doubt that they can do something on their own. If you think they may struggle doing something for themselves then you must grade them low. It goes against everything that we, as parents, hope for our children – they they CAN do things and that if they did it once they can do it again. It’s not fun to spend an hour thinking of your child in this derogatory context. 
  • On a more cheerful note – tonight I start packing for a trip! This trip will be good because I’m combining work AND pleasure. First, bright and early Saturday I’m flying to Boston to spend 3 nights with my BFF. We are spending the first night in Boston at a hotel and going out with friends. Woo-hoo! Then going to her house in New Hampshire until Tuesday morning when I fly down to Washington, D.C. My company has a office just outside of Washington that I travel to a couple times a year. While there I have plans to get together with two more friends and hang out with the co-workers at that office. Fun stuff! I’ll be exhausted on the flight home but it should be a busy & fun week.
  • The day after I get home is my husband’s birthday. What to do, what to do. I know I need to take him shopping for his gift (he has requested sunglasses) but I should think of something else. He likes a big to-do. Hmmm. I’ll probably make cake balls, at least.
  • Is it too early to start looking forward to our annual summer vacation in July??

Pity party, table for 1

On Friday I was very happy to spend some time just being a mom, see my post here: My warring dualities. Then I took yesterday off and wrote a blog, had lunch with my hubby and picked up my kids from school again. The kids were happy, I was happy, and the hubby was happy. I thought about how much happier we all were and I’ve come to a decision.
I WANT TO BE A STAY AT HOME MOM. 
(The louder I say it the more likely it will come true, right? One more time. )
I WANT TO BE A STAY AT HOME MOM.
Or a work part-time from home mom. I’m happy to pick up a little income here and there as I can. 
I want to take care my my kids, my husband and my house. I want to get my home life in order. I want to have the time and energy to focus on just those things for a while. I need it. My family needs it. 
I would be a good SAHM. I would have a routine. Certain days I would clean house. Certain days I would do laundry. I would make time to exercise every day. I would turn the music up LOUD and not worry about anybody seeing me work out.
I would write on this blog more, and possibly write something else. I would pay bills, clean, clean, clean, and work on projects like the closets or washing all the windows. I would run all the errands I don’t have time to do now, and do the grocery shopping too.
I want to be there for my son EVERY TIME he needs me in class. Both of them, really, but in particular for my Autistic guy. When he has a bad start to his day I want the freedom to be there with him as long as he needs me. I want to pick him up from school so I get the low-down from his teachers every day. 
I would be an advocate for my son and for Autism education and support in my state. 
Every day after school I would talk to my boys. I would give them an after school snack, talk about their day with them, and get them started on homework. I would start dinner while we talk so that we can eat dinner early and get a walk before bath and bedtime.
Yes, I do know that to a certain extent I am idealizing being a stay at home mom, but I also know that whatever came up I would be able to deal with it. I’m a good multi-tasker and I can make adjustments on the fly. I know it’s a lot of work. I know it.
I’m gone from my house and family 10 hours a day and it’s not working for me right now. I need more of the kids in my daily life. I need more “me” in my daily life. I want to write. I want to be the best mom and person I can be. I need a change in my life – my career and my health demand it – and I think this could be it.
I WANT TO BE A STAY AT HOME MOM. 

P.S. Now that I have made this decision if someone could please hire my husband at an exorbitant salary so that I can make my SAHM dreams come true I would be ever so grateful. 

My warring dualities

I am a full-time working mom with a fairly demanding job. I work until 6:30-7 (or later) every night. Most nights when I get home I clean the kitchen and make dinner and help with homework if needed. Or, like last night, assist in the filling out, folding, stuffing, and stickering of Valentine’s. Then there’s the whole getting the kids ready for bed thing. The hubby freaks out if the kids’ room is messy at night so it has to be picked up. Every. Night. Then sometimes I’ll sit down at my desk and work even more.
This is my daily life. 
But some days, like today, I get to enjoy the other side of me that I don’t get to tap into very often during the working day. I got be a mom, just a mom, for a while this afternoon. It was wonderful. 
My little guy was diagnosed as High-Functioning Autistic as well as ADHD a couple years ago. It wasn’t a shock – we knew it was something. My 3rd grader is ADHD too; the hubby and most of his family are as well so I suppose it’s no surprise that the kids inherited that gene. Back to Jamie, my bubba – he’s really the cutest kid. Sweet and so loving. He’s my little cuddle-bug. He’s learning so much. Maybe we have always low-balled him because of the Autism, but when he does something well (that is learning level appropriate) we are just ecstatic. Maybe it’s because we’re scared he’s going to go backwards instead of forwards. Each time he reaches a milestone we are over the moon. 
He can seem normal. Sometimes he acts like any other 1st grader. But there are definitely situations we have to deal with more carefully than we would with our other son. Like when we know that his class will be doing something out of the ordinary we have to prepare him for it in advance. Talk it up to him several times and make him aware of everything that’s going to happen. Sometimes I think we forget to do that as much as we should. 
It really shouldn’t have been a surprise when he started being belligerent and difficult this morning. Right before leaving to go to school he got very upset because he didn’t like the way his hair looked and started insisting that it be parted the other way and beating his own head with the brush. I soothed him as best I could, and then I left to take the 3rd grader to school before going on to work. The hubby called 30 minutes later and said it took him 20 minutes to get Jamie calmed down and into his class (tardy, of course). I thought, oh boy, that does not bode well for the rest of the day.
So I called the school to find out when Jamie’s class party was going to be. Then I looked at my schedule and decided I could make it work. I left the office at 2:30 and, oh, I can’t tell you how liberating it was! (I swear I would be an awesome stay at home mom. I would, I really, really would.) Jamie was SO excited when I walked into class. I got to watch him interact with his friends and play games and he did it all so well! You wouldn’t have known he was different. My heart swelled.

When the party was over we picked up the 3rd grader and decided to get a Redbox family movie to watch on this lovely Friday night. As I was driving down the road at 4 pm with my kids chattering in the backseat I must say I was as happy as I have ever been. Oh, we have problems aplenty and I like working . . . but, really, none of that mattered at that moment. 

Yes, I would be a very good stay at home mom indeed.