I borrowed the concept and some of the text below from a post I saw on an Autism awareness page on Facebook. I liked the concept – it does a good job of showing life from an Autistic person’s point of view  – but the original was quite long and, um, a tad rambling. I’ve edited quite a lot for length and pertinent content.

Though every Autistic person is unique in how their developmental disorder manifests itself, these 5 things are fairly common among all Autistics. This is important stuff – especially right now. Contrary to what you may see in the mainstream media these days, Autism is not a mental illness; it is a developmental disorder.

5 Things a Person with Autism Needs

1. Patience

Realize that it takes me longer to do things. It takes me longer to process what’s going on, what I have to do next, and how I’m supposed to do it. Please do not get frustrated. I work best at my own speed. Do not try to rush me because I will only get more confused and more anxious. I often have trouble applying past experiences to new ones and at times it feel like I need to learn new tasks all the way from square one. Please do not give up on me.

2. Space

There will be many times when I will turn inward. I like to shut out the world around me; block everything out. My focus is in a place you can’t see. Just because you can’t see it doesn’t make it less real for me. I’m not doing it on purpose or to hurt you. It’s like a bubble engulfing me and it’s hard for me to pop it. When I get in this place it’s calming for me and my thoughts aren’t racing like they normally do. It is safe.

I have sensory issues so please remember that when things get loud, crowded, or chaotic, I get overwhelmed, frightened and over-stimulated. Please don’t stare, point or ridicule when you see me acting strangely. I may flap my arms. I may hide underneath the table at a restaurant. I may curl up into a ball or burrow under a pile of coats. I’m just trying to insulate myself from the chaos around me. Reset my spinning brain. It’s not because I’m misbehaving. Please do not give up on me.

3. Support

I need to find my niche, my favorite activity, my talent. Please help me to find it so I have something to do that I am good at. This will give me confidence in life. This will be an activity that will calm me and make me feel happy. I need something to keep me busy that makes me feel good at the same time. When I find what I am good at, my self-esteem will increase. This will help my life progress and blossom. It may be something simple – like stacking blocks, riding a bike, or listening to music – or it may be more complex but it will make sense to me. Please give me the support and environment I need to find this activity.

This world often looks down on people like me. I need a little extra help and I need advocates who will help to get me in a good place in life. I may always need some guidance on how to maneuver in this world. I appreciate everything you do for me but sometimes my Autism makes me unable to show you that. Please do not give up on me.

4. Structure

I work best when everything is predictable. When things are always changing my brain can’t keep up. It feels as though the world spins too fast for me and everything is out of control. Many days I live in fear of something drastically changing. It can be the smallest thing that can send me into panic: the wrong brand of cereal, a strong smell, a weird sound, the feeling of stiff, hard jeans on my legs. I am more sensitive to everything around me; that is how my brain works. The best thing for me is consistency in my daily activities. Routine makes me feel safe. Feeling safe and comfortable makes me happy and that enables me to flourish. Please do not give up on me.

5. Understanding and Love

The world can be a scary place for me. I have difficulties with socializing and communicating, but I do have feelings just like you. I have trouble expressing them and bringing them outside of my head so you won’t always be able to tell what I’m feeling. But I love, just as you do, and I need your unconditional love in return. Even when I’m mean to you. It’s just because I can’t say what I’m thinking and I don’t know how to reason through my feelings.

There will be a lot of people in life who will not understand me, who will be annoyed or even afraid of me. I will feel that shadow over me. All I need is your love and to know that there is someone, if only just one person, who loves me unconditionally for who I am. Please do not ever give up on me.

***

Yesterday I heard that there was a vile person who put up a Facebook page saying if he got 50 likes he would go BURN an Autistic person in retaliation for the shooting in Newtown.

I can’t even. I just can’t.

Look at this boy:

Jamie b&w

He is light. He is life. He is LOVE.

To think that someone would consider hurting him is beyond comprehension.

He’s been having a hard time lately. He’s had trouble at school. Trouble tolerating the stimuli around him. Lashing out in frustrated anger at his teachers and peers. We’ve been having meetings. Making phone calls. Seeking help, instruction, assurance. How do we help him to cope? What can we do to teach him coping skills? What can the school do?

We’re on a path. We just keep trudging along. They are making adjustments at the school. It’s been going on for a few months and seemed to peak following Thanksgiving break.

But the other day something momentous happened. I was trying to get him to go to the bathroom. I knew he needed to go. He was doing the thing he does when he’s holding his pee. He got angry at me for telling him he needed to go. He came up to my face, yelled at me, and he was about to hit me – I know, it’s happened enough times – and then a wonderful thing happened. The look on his face changed; some of the stormy-ness fell away. I saw the moment he realized what he was doing and stopped it. He dropped his hand, stepped back and turned away from me. He walked a few steps back and looked away. He stopped himself in the middle of his emotional outburst. That has NEVER happened. I was so proud I may have cried. Just a little.

Then, the next day, his communication log that came home from his paraprofessional at school was glowing. He participated! He engaged! He didn’t get upset, frustrated or angry all day. He played football at recess, for goodness sake! WHAT THE WHAT??

Is it a sign? Are the coping skills that he needs at this point in his life (the onset of puberty, escalated school demands, peer group involvement, etc.) finally kicking in? Oh please, oh please, oh please, make it so. My momma’s heart needs some positivity right now. I need to feel confident that my baby will grow and learn and adjust and thrive. I need to know that so badly.

I don’t mind if he’s weird just as long as he has growth. Weird isn’t bad. It’s just different. Different is good. Can we all start teaching that to others now? Different is okay. Different is normal. Let’s embrace the people in our society who are different and not make them feel like outcasts. It’s so important to our collective consciousness as a nation to feel a little more unity and a little more acceptance.

Now go forth! Be tolerant and spread love. Be the change you want to see in the world. We’ve all heard that, but do we live it?

Yours, in hope,

Stef

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